Christ is Born! Glorify Him! So much joy in that, even amongst the sorrow.
It has been some time since I’ve written anything. I kept avoiding it. Let’s face it, it can be easier to run away than to put pen to paper. I feel rather sick of complaining about how hard my life is, but some of this suffering weighs heavy on my chest. I am reminded of Christ’s suffering on the cross, and how His burden of the world was beyond measurable, but even so, a sick child feels dreadful.
My youngest child and I will be staying in the hospital at the end of January for five days. He will be undergoing testing due to his refractory seizures. After that, neurologists and providers in the neurology field will discuss the testing regarding his case and determine if he would be a candidate for brain surgery. This process of determination will take six weeks. As a reminder, my son was diagnosed with Tuberous Sclerosis Complex, which is a genetic condition, an altered link in a chain within his DNA. His body cannot suppress tumors from growing the way we can. I didn’t even know we were doing that, genetically!
Tuberous Sclerosis Complex (TSC) affects two genes that have been identified by researchers.
Please keep us in your prayers and I’d love to hear from you!


4 responses to “A link in a chain…”
I will definitely keep you in my prayers. That sounds very hard, but you are a tough lady! God knows what he’s doing go even though we don’t. Give the little guy a squeeze from me 🙂
Thank you, Sarah. I am fully trusting in Him..well trying really hard! I will squeeze him! 🙂
Oh friend praying for you! That sounds so very difficult. May God guide you and hold you close in His hands. May the Mother of God cover you with her ominphora!
Thank you so very much! God will see us through and I’m thankful to be able to write about it.